Glossary & Related Links Listed in the Related Link &
Resources and Glossary of Terms & Abbreviations is information
that may be useful. They are not all inclusive lists and
the sites listed are not a part of Via of the Lehigh Valley’s
website. You will be directed off Via’s website when you
click on any of the links.
To submit a term for the related links or glossary, contact:
via@vianet.org
Glossary of Terms & Abbreviations The terms listed below
are ones that may be useful. This is not an all inclusive
list and the sites listed below are not a part of Via
of the Lehigh Valley’s website. You will be directed off
Via’s website when you click on the links below.
For more extensive information on any of the terms listed
below, visit the Resources and Related Links section of
our website. To submit a term for the glossary, contact:
via@vianet.org
A B C
D E F
G H I
J K L
M N O
P Q R
S T U
V W XYZ
A
ADA - Americans with Disabilities Act — Answers to commonly
asked questions about how the ADA (Americans with Disabilities
Act) affects employment, transportation, public facilities
and other areas of access. http://www.adaportal.org/
APSE - Association for People in Supported Employment
— APSE is an advocacy organziation that works to improve
and expand integrated employment opportunities, services,
and outcomes for persons experiencing disabilities. http://www.apse.org/
Asperger syndrome — Asperger’s syndrome is a developmental
disorder in which people have severe difficulties understanding
how to interact socially. People with Asperger's syndrome
have some traits of autism, especially weak social skills
and a preference for sameness and routine. But unlike
those with autism, children with Asperger's syndrome usually
start to talk around 2 years of age (the age at which
speech normally develops). They have normal to above-normal
intelligence. Both conditions belong to the group of disorders
called pervasive developmental disorders. As many as 3
out of every 10,000 people have Asperger's syndrome.
C
CBS - Via's Community Based Supports or Community Voluneteer
Services — Services provided by Via
CCRD - Child Care Resource Developers of Pennsylvania
— A statewide initiative, created by the Pennsylvania
Department of Public Welfare, to enhance community solutions
to improving the quality and increasing the capacity of
child care services in Pennsylvania.
CCRD agencies were created through a statewide initiative
to offer grant assistance, and resources linkages to child
care providers to improve the quality and increase the
capacity of services in Pennsylvania. The CCRD manages
the Keystone STARS program and also works with community
groups and businesses to promote strategies to meet child
care and early care and education needs in each community.
CDC - Center for Disease Control — The information center
includes: information about developmental disabilites;
activities of CDC and other federal agencies; state activities
funded by CDC; education, services, and research resources;
and activities to help children use the Internet to learn
more. http://www.cdc.gov/ncbddd/dd/default.htm
CE - Customized Employment — Creative employment option
for people not interested in Supported Employment, some
examples are small business ownership or resource ownership.
CES - Via's Community Employment Services — Services provided
by Via
CIS - Via's Consumer Information System — Via's demographic
and billing database
CMS - Centers for Medicare and Medicaid Services — CMS
works to ensure effective, up-to-date health care coverage
and to promote quality care for beneficiaries. CMS wants
to achieve a transformed and modernized health care system
and will continue to transform and modernize America's
health care system.
http://www.cms.hhs.gov/
Community Based Work Assessement - CBWA — CBWA is a stand
alone service for evaluation purposes only. It uses job
coaches to assess a potentional Vocational Rehabitlation
(VR) customer at 3-5 actual job sites in the community.
It is done to permit the individual and the VR counselor
an opportunity to determine if the individual is one who
is qualified to proceed with supported employment as a
service funded by VR. At the end a report is written and
a decision to move forward with Supported Employment services
is determined. Assessments run from 20-40 hours with an
average of 30.
CP - Cerebral Palsy — CP is a group of motor problems
and physical disorders related to a brain injury. CP causes
uncontrolled reflex movements and muscle tightness (spasticity)
that may affect a part, a side, or the entire body, with
varying severity. Several conditions, such as mental retardation,
seizures, or vision and hearing problems, are often also
associated with cerebral palsy.
Customized Employment — Customized Employment means individualizing
the relationship between job seekers and employers in
ways that meet the needs of both. It is based on an individualized
determination of the strengths, requirements, and interests
of a person with a complex life. The process is designed
to meet the workplace needs of the employer and the discrete
tasks of the position. When a customized relationship
is developed, a shared employment alliance results.
D
Developmental Disability — Developmental disability is
a term used to describe life-long disabilities attributable
to mental and/or physical or combination of mental and
physical impairments, manifested prior to age twenty-two.
The term is used most commonly in the United States to
refer to disabilities affecting daily functioning in three
or more of the following areas: capacity for independent
living, economic self-sufficiency, learning, mobility,
receptive and expressive language, self-care or self-direction.
Developmental disabilities are usually classified as severe,
profound, moderate or mild, as assessed by the individual's
need for supports, which may be lifelong.
Discovery — Is an assessment process that seeks to answer
the questions “who is this person?” and “what are the
ideal conditions of employment?” The process most often
starts at home, includes an inventory of the surrounding
neighborhood (with transportation and natural supports
an on-going employment and inclusion issue, it makes sense
to look for interests can be explored through informational
interviews, paid work experiences. Discovery runs from
25-50 hours with an average of 40.
Down Syndrome — Down syndrome is a lifelong condition
in which a person is born with distinct physical features,
such as a flat face and short neck, and some degree of
cognitive disability (mental retardation). Although Down
syndrome is permanent, most people who have it are able
to live healthy, productive lives. Given the proper care
and help they need, children with Down syndrome can flourish
and grow into healthy and happy adults.
DPW - Department of Public Welfare — The mission of the
Department of Public Welfare is to: Promote, improve and
sustain the quality of family life; Break the cycle of
dependency; Promote respect for employees; Protect and
serve Pennsylvania’s most vulnerable citizens; and Manage
our resources effectively.
http://www.dpw.state.pa.us/
E
EI - Early Intervention — Services provided by Via
EI - Early Intervention — A program that helps families
develop their child's potential. All children grow and
learn at different rates. Children who are developing
more slowly than typical children are offered Early Intervention
services. EI, an entitelment program, is funded by federal,
state, and county funds, public insurance and many community
resources. Children who have special needs due to development
delays or disabilities are eligible to receive early intervention
services.
EIS - Early Intervention Specialist — Early Intervention
Specialists (EIS) address all areas of a child’s development
focusing on their individual learning style. Working with
the parents or caregivers, an EIS implements a SI plan
that assists a child in their ability to play and interact
in their environment. A child’s capacity to understand
the world around them, learn independence and communicate
and interact with others is some of the areas addressed
by an Early Intervention Specialist.
F
FMLA - Family Medical Leave Act — Federal law adminstered
by the US Department of Labor that states covered employers
must grant an eligible employee up to a total of 12 workweeks
of unpaid leave during any 12-month period for one or
more of the following reasons: for the birth and care
of the newborn child of the employee; for placement with
the employee of a son or daughter for adoption or foster
care; to care for an immediate family member (spouse,
child, or parent) with a serious health condition; or
to take medical leave when the employee is unable to work
because of a serious health condition.
http://www.dol.gov/esa/whd/fmla/
Follow Along Services — Follow-Along services are designed
for individuals in community employment who need support
after successfully completing job training. Follow Along
services assist participants with issues such as adapting
to changes in supervisors, assigned work tasks, living
situation, etc.: Vocational case management; periodic
work-site visits to monitor work performance; additional
job coaching and support when or as needed; regular job
retention/socialization groups; long term career and life-planning
and options-planning should the consumer lose his/her
job.
Fragile X Syndrome — Fragile X Syndrome is a defect of
the X chromosome which causes mild mental retardation.
The disorder occurs more frequently and severely among
males than females. This condition is the leading known
familial cause of mental retardation in the United States.
Language delays, behavioral problems, autism or autistic-like
behavior (including poor eye contact and hand-flapping),
enlarged external genitalia (macroorchidism), large or
prominent ears, hyperactivity, delayed motor development
and/or poor sensory skills are among the wide range of
symptoms associated with this disorder.
H
HCSIS - Home and Community Services Information System
— Office of Mental Retardation's (OMR) statewide database.
https://www.humanservices.state.pa.us/hcsis/default.asp
HHS - Health & Human Services — US agency for protecting
the health of all Americans and providing essential human
services, especially for those who are least able to help
themselves. HHWS includes more than 300 programs including:
Health and social science research, Preventing disease,
including immunization services, Medicare (health insurance
for elderly and disabled Americans) and Medicaid (health
insurance for low-income people), Health information technology,
Financial assistance and services for low-income families,
and Head Start (pre-school education and services).
www.hhs.gov
HSRI - Human Services Research Institute — HSRI assists
states and the federal government to enhance services
and supports to people with mental illness and people
with mental retardation, and to support the development
of alternatives to congregate care facilities.
HSRI was active in the 1970s in the assessment of the
impact of federal programs, such as Supplemental Security
Income, housing subsidies, and vocational rehabilitation,
and their application on the expansion of community services
for people with disabilities. HSRI staff also participated
in the implementation of the Community Support Program
at the National Institute of Mental Health, and in the
design of a housing research agenda for people with disabilities.
http://www.hsri.org/
I
Inclusive Childcare — Services provided by Via in partnership
with the United Way
Inclusive Childcare — Children with and without disabilities
share high quality developmental learning experiences
together. Staff and administration of an inclusive center
commit to facilitate the specialized learning needs of
children with disabilities, and work with inclusion professionals
to develop a curriculum that fulfills the parent expectations
for the kind of programs and experiences they want for
their children.
Industrial Services — Services provided by Via - workshop
program
IRWE - Impairment Related Work Expense — Out–of–pocket
costs of items, SSA calls impairment–related work expenses
(IRWE), that are deducted from the amount of earnings
used to figure your SSI benefit. Your SSI benefits are
not reduced as much because SSA does not count all of
your earnings.
ISP - Individual Service Plan — A plan that lists the
services to be received, who will provide those services,
how much it will cost and the goals to be achieved
IU - Intermediate Unit — There are 29 IU's throughout
Pennsylvania, which were created in 1971 to provide services
to school districts in ways that create economies of scale,
cost savings, and better efficiencies in the delivery
of important programs and services to children, especially
those with special needs. They play an important role
in providing substantial support services to the administrators
and teachers in local school districts. IU's mission in
PA is (1) to strengthen and supplement local school district
programs and services to children and their families;
(2) to provide leadership without dominance; and (3) to
provide assistance without interference.
J
Job Carving — Job carving involves melding job seeker
and employer needs through systematic workplace analysis
and person-centered career planning. Contrary to popular
belief, job carving does not begin with the employer or
the worksite. Instead, carving is based on the concept
of using a person’s unique contributions and matching
those to an employment setting.
Job Coach — A job coach is a person who is hired by the
placement agency to provide specialized on-site training
to assist the employee with a disability in learning and
performing the job and adjusting to the work environment.
K
Keystone STARS (Standards, Training, Assistance, Resources,
& Support) — A quality improvement initiative designed
to recognize and reward child care providers who exceed
state health and safety licensing requirements. Child
care providers are awarded a STAR One, STAR Two, STAR
Three, or STAR Four quality rating based on their achievement
of quality performance standards in the areas of staff
education, learning environment, and administration. The
star rating reflects standards of quality that are research-based
and linked to improved outcomes for children, as related
to social and emotional development, learning skills,
and school readiness. www.ccrdpa.org/stars.htm
http://www.pakeys.org
L
Licensing — Via has 3 program licensed by Office of Mental
Retardation - the workshop (Via's Industrial Servcies),
some family living programs and Early Intervention. Each
has a set of regulations and is audited by the regional
OMR inspectors annually.
M
MANDT training — Training for staff to primarily de-escalate
behavior with a small component of restraint training,
this is the only restraint technique allowed by Via.
MATP - Medical Assistance Transportation Program — Provides
non-emergency transportation to medical assistance compensable
medical visits for Commonwealth MA recipients. The Commonwealth
grants MATP funds to all Pennsylvania counties, with the
exception of Philadelphia County, to administer the provision
of transportation services to recipients and provides
annual allocations to each county for this service. Counties
contract with local transportation agencies to provide
services to recipients. In the case of Philadelphia County,
the Commonwealth contracts directly with a transportation
broker to administer and provide services. It is possible
that the new MMIS, which is scheduled for implementation
in early 2004, may support non-emergency transportation
claims processing.
http://www.dpw.state.pa.us/LowInc/MATP/003670190.htm
MR- Mental Retardation — Mental retardation is a term
for a pattern of persistently slow learning of basic motor
and language skills ("milestones") during childhood, and
a significantly below-normal global intellectual capacity
as an adult. One common criterion for diagnosis of mental
retardation is a tested intelligence quotient (IQ) of
70 or below.
N
NAEYC - National Association for the Education of Young
Children — Organization dedicated to improving the well-being
of all young children, with particular focus on the quality
of educational and developmental services for all children
from birth through age 8. NAEYC is committed to becoming
an increasingly high performing and inclusive organization.
Founded in 1926, NAEYC is the world's largest organization
working on behalf of young children with more than 100,000
members, a national network of nearly 450 local, state,
and regional Affiliates, and a growing global alliance
of like minded organizations.
http://www.naeyc.org/
NC MH/MR/D&A - Northampton County Mental Health, Mental
Retardation, Drug &Alcohol Division — This website has
been designed to provide detailed information about NC
MH/MR/D&A programs and services. The site also offers
news, contact information for all staff members, popular
downloadable forms and documents, driving directions to
our building, and links to other helpful websites.
http://www.northamptoncounty.org/northampton/cwp/view.asp?
a=1528&Q=620700&NorthamptonNav_GID=2001&northamptonNav=|34430|
&northamptonNav_GID=1977
NIH - National Institutes of Health — NIH is the nation's
medical research agency – making important medical discoveries
that improve health and save lives. NIH, a part of the
U.S. Department of Health and Human Services, is the primary
Federal agency for conducting and supporting medical research.
http://www.nih.gov/
NISH - National Institute for the Severely Handicapped
— NISH is a national nonprofit agency whose mission is
to create employment opportunities for people with severe
disabilities by securing Federal contracts through the
AbilityOne Program, formally Javits-Wagner-O'Day (JWOD)
for its network of community-based, nonprofit agencies.
www.nish.org
NOD - National Association of Disability — The mission
of the National Organization on Disability (N.O.D.) is
to expand the participation and contribution of America’s
54 million men, women and children with disabilities in
all aspects of life. By raising disability awareness through
programs and information, together we can work toward
closing the participation gaps.
http://www.nod.org
O
OMR - Office of Mental Retardation — OMR directs the fiscal
and program planning, management and oversight of all
mental retardation program operations including state
operated facilities, community mental retardation programs
and early intervention programs.
http://www.dpw.state.pa.us/General/AboutDPW/DPWOrganization/OMR/
OMR Bulletins — OMR sends out bulletins to add regulations
or inform providers of OMR philosophy or direction
OT - Occupational Therapy — Occupational Therapists focus
on how a child receives and uses input from their senses
(vision, hearing, touch and movement). By working with
this “sensory-motor” development, children acquire “fine
motor” skills, such as use of the eyes and hands together,
so the environment is more accessible and fun. Fine motor
skills are used for play, feeding, dressing and school
activities.
OVR - Office of Vocational Rehabilitation — OVR is a program
under the state of Pennsylvania Department of Labor and
Industry that assists Pennsylvanians with disabilities
to prepare for, obtain, and retain employment. OVR has
its own job placement counselors, but typically refers
to agencies like Via for people with more significant
disabilities who will require ongoing support to retain
their employment.
http://www.dli.state.pa.us/landi/cwp/browse.asp?a=128
&bc=0&c=27855
P
PACCA - Pennsylvania Child Care Association — PACCA is
dedicated to facilitating the provision of quality early
care and education to the children of Pennsylvania by:
promoting the value of educationally appropriate child
care to the general public; advocating at the local, state,
and federal levels for quality early care and education
that responds to the needs of Pennsylvania children and
families; providing a forum in which members can work
cooperatively to develop programs and provide services;
advocate to enhance the status of the child care profession.
www.pacca.org
http://www.pacca.org/index.htm
PADDC - Pennsylvania Developmental Disabilities Council
— PADDC is made up of people with disabilities, family
members, advocates, and state department representatives
who work to create favorable conditions for people with
developmental disabilities and their families in the Commonwealth.
PADDC learns about the present situation for people with
developmental disabilities and their families in Pennsylvania
and considers actions and strategies that will lead to
more integrated and productive lives for people with developmental
disabilities in our state.
http://www.paddc.org/
PARF - Pennsylvania Association of Rehabilitation Facilities
— PARF is a statewide organization of facilities serving
individuals with physical, mental, social and/or emotional
disabilities. PARF works to improve the availability,
accessibility and quality of rehabilitation services for
persons with disabilities across the Commonwealth.
http://www.parf.org/
PASS - Plan to Achieve Self Support — Administer through
Social Security, PASS is a tool that a person with a disability
uses to set aside income or resources to reach a work
goal. For example, a person could set aside money for
an educational or training program or to start a business.
http://www.socialsecurity.gov/disabilityresearch/wi/pass.htm
PDD - Pervasive Developmental Disorders — The diagnostic
category pervasive developmental disorders (PDD), as opposed
to specific developmental disorders (SDD), refers to a
group of five disorders characterized by delays in the
development of multiple basic functions including socialization
and communication. The most commonly known PDD is (1)
Autistic Disorder, with the remaining identified as (2)
Rett's Disorder, (3) Childhood Disintegrative Disorder,
(4) Asperger's Syndrome, and (5) Pervasive Developmental
Disorder Not Otherwise Specified (or PDDNOS). Parents
may note symptoms of PDD as early as infancy and typically
onset is prior to 3 years of age. PDD itself generally
does not affect life expectancy.
PT - Physical Therapy — Physical Therapists work with
children to develop gross motor skills such as rolling,
sitting, crawling, walking, climbing stairs or riding
a bike. Therapists also work to improve children’s ability
to maintain good body posture and move through their environment
safely.
PUNS - Prioritization of Urgency of Need for Services
— PUNS provides a uniform instrument that is used by County
Mental Retardation Programs, on an on-going basis, to
collect a standard set of data on individuals who are
waiting for mental retardation services and supports.
PUNS has been formally adopted by the Office of Mental
Retardation as a requirement for annual County Plans and
for use in program budgeting. The County Plan and Budget
Process is the annual planning and budgeting process in
place across Pennsylvania to address the needs of individuals.
R
Resource Ownership — Resource ownership is a strategy
that specifically identifies a resource that an individual
with a disability can offer to a company. The individual
purchases and owns the equipment or property and is paid
wages by the business where they are hired. If the individual
moves to another position, the resource still belongs
to the individual. Resource ownership can empower a person
with a disability and provide an advantage when he or
she is negotiating a customized position with an employer.
Resource ownership might lead to self-employment, and
an individual eventually owning his or her business.
Rett Syndrome — Rett Syndrome is a rare neurodevelopmental
disorder that appears to occur almost exclusively in females
but can occur rarely in males. Infants and children with
the disorder typically develop normally until about 7
to 18 months of age, when they may begin to lose previously
acquired skills (developmental regression), such as purposeful
hand movements and the ability to communicate. Additional
abnormalities typically include slowing of head growth
(acquired microcephaly); development of distinctive, uncontrolled
(stereotypic) hand movements, such as hand clapping, rubbing,
or "wringing"; and impaired control of voluntary movements
required for coordination of walking (gait apraxia). Affected
children also typically develop autistic-like behaviors,
breathing irregularities, feeding and swallowing difficulties,
growth retardation, and episodes of uncontrolled electrical
activity in the brain (seizures).
S
SE - Supported Employment — Supported employment facilitates
competitive work in integrated work settings for individuals
with the most severe disabilities (i.e. psychiatric, mental
retardation, learning disabilities, traumatic brain injury)
for whom competitive employment has not traditionally
occurred, and who, because of the nature and severity
of their disability, need ongoing support services in
order to perform their job. Supported employment provides
assistance such as job coaches, transportation, assistive
technology, specialized job training, and individually
tailored supervision.
SI - Specialized Instruction — Early Intervention Specialists
(EIS) address all areas of a child’s development focusing
on their individual learning style. Working with the parents
or caregivers, an EIS implements a SI plan that assists
a child in their ability to play and interact in their
environment. A child’s capacity to understand the world
around them, learn independence and communicate and interact
with others is some of the areas addressed by an Early
Intervention Specialist.
SSA - Social Security Administration — SSA pays retirement,
disability and survivors benefits to workers and their
families and administer the Supplemental Security Income
program.
http://www.ssa.gov/
SSDI - Social Security Disability Income — SSDI is paid
to people with disabilities who have worked in recent
years and have earned wages and paid into the SSA system.
SSDI is also for people with disabilities who have deceased
parents who have paid into SSA.
SSI - Supplemental Security Income — SSI is paid to individuals
who are low income individuals/families and disabled whether
or not the individual has worked in the past. SSI child's
disability benefits are paid to children who are under
18 years old, are disabled and the parents or guardian
are of lower income.
SSI Work Incentives — SSI Work Incentives are rules that
determine how your Supplemental Security Income (SSI)
benefits will be affected while you prepare for and go
to work. They are designed to help you enter or reenter
the workforce. You are encouraged to work or to seek education
or training for future employment. Work Incentives are
intended to give you some of the support you need while
you try to move from benefit dependency to increased
self-sufficiency.
ST - Speech Therapy — Speech Therapists focus on development
of skills that enable a child to express themselves and
understand others. Speech Therapists encourage natural
development of communication skills like babies locating
sounds and responding to language, and making their first
sounds or gestures. Muscle development of the mouth and
face is necessary to facilitate speech and eating skills.
A Speech Therapist looks at how a child is using their
muscles and works to improve “oral-motor” skills for better
eating and speech.
T
TBI - Traumatic Brain Injury — TBI, also called acquired
brain injury or simply head injury, occurs when a sudden
trauma causes damage to the brain. TBI can result when
the head suddenly and violently hits an object, or when
an object pierces the skull and enters brain tissue. Symptoms
of a TBI can be mild, moderate, or severe, depending on
the extent of the damage to the brain.
W
WAC - Work Activity Center or Workshop Program — Licensing
term used for Via's Industrial Services program.
Waiver — Waiver is the shortened term for Medicaid Home
and Community Based Waiver Program, which provides the
majority of funding for the Pennsylvania mental retardation
supports and services to help people with disabitlties
live in their home and community rather than in an institution.
Waiver - Consolidated — The Consolidated Waiver for Individuals
with Mental Retardation provides services to eligible
persons with mental retardation so that they can remain
in the community. Financial Eligibility: Age 3 and older;
Mental retardation. Services: Environmental accessibility
adaptations; Habilitation services (residential, day,
prevocational, supported employment services, homemaker/chore
services, adaptive equipment); Permanency planning; Respite
care; Specialized therapy; Transportation; and Visiting
nurse.
Waiver - Home & Community Based — Waiver programs generally
support persons in their own homes, in your family home,
in family living home (Lifesharing), or group living arrangements
(CLAs). Pennsylvania has received federal approval to
operate two waivers generally known as the (1) Consolidated
Waiver, and (2) Person/Family Directed Support Waiver.
Waiver - Person Family Directed — Provides habilitation
services to persons over age three who demonstrate significant
developmental delays and are living at home. Waiver services
are authorized by County MH/MR Programs and services are
delivered by agencies under contract with the county.
Waiver Funds — State funds for people with disabilities
that is matched by the federal government with Medicaid
money- there are 2 types for people in the mental retardation
system (consolidated waiver and PFDS or person family
directed waiver)- the funds are used to keep people with
disabilities in the community instead of institutions.
References
Resources and Related Links
The resources and related links listed below are organizations
and websites that may be useful. This is not an all inclusive
list and the sites listed below are not a part of Via
of the Lehigh Valley’s website. You will be directed off
Via’s website when you click on the links below. To submit
a resource or related link, contact:via@vianet.org
Transportation
Development & Disability Resources
Government Agencies & Programs
Healthcare Resources
Children's Resources
Childcare & Education Resources
Human Service Agencies
LANTA/Metro Plus
1060 Lehigh Street Allentown Pa, 18103 610-432-3200 Operates
Metro fixed-rate city bus transportation. Metro Plus provides
door-to-door transportation services for elderly and disabled
who cannot board a regular transit vehicle.
http://www.lantabus.com/services/metroplus.php
LANTA/MetroPlus – Easton Coach
1200 Conroy Place Easton, PA 18040 610-253-8333 Provides
safe and affordable transportation to the elderly and
disabled of Northampton and Lehigh counties while assisting
individuals to live independently, productively and with
dignity in the community. A shared-ride service for people
who are unable to use LANTA/Metro fixed route bus services
due to lack of ability, or for those who need specialized
service. Prospective passengers must apply for Metro Plus
services by completing an application (available on the
website) and must call in advance to schedule trips.
http://www.lantabus.com/services/metroplus.php
Medical Assistance Transportation Program (MATP)
Provides non-emergency transportation to medical assistance
compensable medical visits for Commonwealth MA recipients.
The Commonwealth grants MATP funds to all Pennsylvania
counties, with the exception of Philadelphia County, to
administer the provision of transportation services to
recipients and provides annual allocations to each county
for this service. Counties contract with local transportation
agencies to provide services to recipients.
http://www.dpw.state.pa.us/LowInc/MATP/003670190.htm
Americans with Disabilities Act (ADA)
Portal Answers to commonly asked questions about how the
ADA (Americans with Disabilities Act) affects employment,
transportation, public facilities and other areas of access.
http://www.adaportal.org/
Association for People in Supported Employment
(APSE)
APSE is an advocacy organization that works to improve
and expand integrated employment opportunities, services,
and outcomes for persons experiencing disabilities.
http://www.apse.org/
Autism Society of America - Lehigh Valley Chapter
(ASA)
ASA Lehigh Valley Chapter is a non-profit organization
supporting families and professionals involved with autism.
ASA offers a network in which parents, teachers, therapists,
and other concerned professionals can support each other
by exchanging ideas and information in a friendly atmosphere.
Membership benefits include: monthly meetings, guest speakers
on a variety of autism and parenting-related topics; social
activities at which families can get together and network
in a supporting and understanding environment; newsletter
containing schedule and news of local programs, events
and conferences; phone hotline available for questions
and updates of upcoming activities 610-778-9212.
http://www.asalehighvalley.org/
Autism Society of America (ASA)
ASA is dedicated to increasing public awareness about
autism and the day-to-day issues faced by individuals
with autism, their families and the professionals with
whom they interact. ASA's mission is to provide information
and education, and support research and advocate for programs
and services for the autism community.
www.autism-society.org
Center for Research on Women with Disabilities
Located at Baylor College of Medicine, this site contains
reports from national studies of interest to professionals.
http://www.bcm.tmc.edu/crowd/
Cornucopia of Disability Information (CODI)
CODI serves as a community resource for consumers and
professionals by providing disability information in a
wide variety of areas. It consists of both an Internet
Directory of Disability Information and a repository of
electronic disability documents, dating back to the early
1990s. Many of the documents on CODI are publicly available
nowhere else on the Internet.
http://codi.buffalo.edu/
Disability History Museum
Materials in the Library date back to the 18th century
and represent all disabilities, illustrating daily life,
work, charity, popular culture, local and national political
milestones.
http://www.disabilitymuseum.org/
Disability Resources on the Internet
This is a national site that maintains an online guide
to disability resources.
http://www.disabilityresources.org/
DisabilityInfo.gov
The federal government's one-stop web site for people
with disabilities, their families, employers, veterans,
workforce professionals and many others. DisabilityInfo.gov
connects people with disabilities to the information and
resources they need to actively participate in the workforce
and in their communities.
http://www.disabilityinfo.gov
Educational Resources Information Center (ERIC)
Clearinghouse ERIC gathers and disseminates professional
literature, information, and resources on the education
and development of individuals of all ages who have disabilities
and/or who are gifted.
http://ericec.org/
Human Services Research Institute (HSRI)
HSRI assists states and the federal government to enhance
services and supports to people with mental illness and
people with mental retardation, and to support the development
of alternatives to congregate care facilities. HSRI was
active in the 1970s in the assessment of the impact of
federal programs, such as Supplemental Security Income,
housing subsidies, and vocational rehabilitation, and
their application on the expansion of community services
for people with disabilities. HSRI staff also participated
in the implementation of the Community Support Program
at the National Institute of Mental Health, and in the
design of a housing research agenda for people with disabilities.
http://www.hsri.org/
Makoa - disABILITY Information and Resources
This national resource listing of interesting sites is
produced and updated by a person with disabilities. Makoa
means courageous in Hawaiian.
http://www.makoa.org
Medicaid Resource Book
This reference book describes four pivotal aspects of
how the Medicaid program operates: who it covers, what
it covers, how it is financed, and how it is administered.
This is the website for the Kaiser Family Foundation,
a non-profit, private operating foundation focusing on
the major health care issues facing the U.S., with a growing
role in global health. Unlike grant-making foundations,
Kaiser develops and runs its own research and communications
programs, sometimes in partnership with other non-profit
research organizations or major media companies.
http://www.kff.org/medicaid/2236-index.cfm
National Association of Disability (NOD)
The mission of the National Organization on Disability
(N.O.D.) is to expand the participation and contribution
of America’s 54 million men, women and children with disabilities
in all aspects of life. By raising disability awareness
through programs and information, together we can work
toward closing the participation gaps.
http://www.nod.org
National Institute for the Severely Handicapped
(NISH)
NISH is a national non-profit agency whose mission is
to create employment opportunities for people with severe
disabilities by securing Federal contracts through the
AbilityOne Program, formally Javits-Wagner-O'Day (JWOD)
for its network of community-based, non-profit agencies.
www.nish.org
Pennsylvania Association of Rehabilitation Facilities
(PARF)
PARF is a statewide organization of facilities serving
individuals with physical, mental, social and/or emotional
disabilities. PARF works to improve the availability,
accessibility and quality of rehabilitation services for
persons with disabilities across the Commonwealth.
http://www.parf.org/
Pennsylvania Developmental Disabilities Council
(PADDC)
PADDC is made up of people with disabilities, family members,
advocates, and state department representatives who work
to create favorable conditions for people with developmental
disabilities and their families in the Commonwealth. PADDC
learns about the present situation for people with developmental
disabilities and their families in Pennsylvania and considers
actions and strategies that will lead to more integrated
and productive lives for people with developmental disabilities
in our state.
http://www.paddc.org/
Quality Mall QualityMall.org
a showcase of promising practices and innovations that
promote quality of life for persons with developmental
disabilities, was developed by the Research and Training
Center on Community Living at the University of Minnesota’s
Institute on Community Integration (RTC/ICI), the National
Association of State Directors of Developmental Disabilities
Services (NASDDDS), and Human Services Research Institute
(HSRI).
http://www.qualitymall.org/directory/
Agency for Healthcare Research and Quality (AHRQ)
The Agency for Healthcare Research and Quality (AHRQ)
is the lead Federal agency charged with improving the
quality, safety, efficiency, and effectiveness of health
care for all Americans. As one of 12 agencies within the
Department of Health and Human Services, AHRQ supports
health services research that will improve the quality
of health care and promote evidence-based decision making.
http://www.ahrq.gov/
CDC (Center for Disease Control)
Developmental Disabilities Information Center The information
center includes: information about developmental disabilities;
activities of CDC and other federal agencies; state activities
funded by CDC; education, services, and research resources;
and activities to help children use the Internet to learn
more.
http://www.cdc.gov/ncbddd/dd/default.htm
Centers for Medicare and Medicaid Services (CMS)
CMS works to ensure effective, up-to-date health care
coverage and to promote quality care for beneficiaries.
CMS wants to achieve a transformed and modernized health
care system and will continue to transform and modernize
America's health care system.
http://www.cms.hhs.gov/
Department of Public Welfare (DPW)
The mission of the Department of Public Welfare is to:
Promote, improve and sustain the quality of family life;
Break the cycle of dependency; Promote respect for employees;
Protect and serve Pennsylvania’s most vulnerable citizens;
and Manage our resources effectively.
http://www.dpw.state.pa.us/
Family Medical Leave Act Website (FMLA)
Federal law administered by the US Department of Labor
that states covered employers must grant an eligible employee
up to a total of 12 workweeks of unpaid leave during any
12-month period for one or more of the following reasons:
for the birth and care of the newborn child of the employee;
for placement with the employee of a son or daughter for
adoption or foster care; to care for an immediate family
member (spouse, child, or parent) with a serious health
condition; or to take medical leave when the employee
is unable to work because of a serious health condition.
http://www.dol.gov/esa/whd/fmla/
Health & Human Services (HHS)
US agency for protecting the health of all Americans and
providing essential human services, especially for those
who are least able to help themselves. HHWS includes more
than 300 programs including: Health and social science
research, Preventing disease, including immunization services,
Medicare (health insurance for elderly and disabled Americans)
and Medicaid (health insurance for low-income people),
Health information technology, Financial assistance and
services for low-income families, and Head Start (pre-school
education and services).
www.hhs.gov
Home and Community Services Information System
(HCSIS)
Office of Mental Retardation's (OMR) statewide database.
https://www.humanservices.state.pa.us/hcsis/default.asp
Lehigh County Department of Human Services
The Lehigh County Department of Human Services administers
services through the Offices of the Area Agency on Aging,
Bureau of Adult and Residential Services, Children and
Youth Services, Mental Health, Mental Retardation, Health
Choices, Drug and Alcohol programs and Veteran's Affairs
as required by local, state and federal mandates.
http://www.lehighcounty.org/Human/hs.cfm
Northampton County Mental Health, Mental Retardation,
Drug &Alcohol Division (NC MH/MR/D&A)
This website has been designed to provide detailed information
about NC MH/MR/D&A programs and services. The site also
offers news, contact information for all staff members,
popular downloadable forms and documents, driving directions
to our building, and links to other helpful websites.
http://www.northamptoncounty.org/northampton/cwp/view.asp
?a=1528&Q=620700&NorthamptonNav_GID=2001&northamptonNav=|34430
|&northamptonNav_GID=1977
Office of Disability Employment Policy (ODEP)
ODEP provides national leadership by developing and influencing
disability-related employment policy and practice affecting
the employment of people with disabilities.
http://www.dol.gov/odep/
Office of Mental Retardation (OMR)
OMR directs the fiscal and program planning, management
and oversight of all mental retardation program operations
including state operated facilities, community mental
retardation programs and early intervention programs.
http://www.dpw.state.pa.us/General/AboutDPW/DPWOrganization/OMR/
Office of Vocational Rehabilitation (OVR)
OVR is a program under the state of Pennsylvania Department
of Labor and Industry that assists Pennsylvanians with
disabilities to prepare for, obtain, and retain employment.
OVR has its own job placement counselors, but typically
refers to agencies like Via for people with more significant
disabilities who will require ongoing support to retain
their employment.
http://www.dli.state.pa.us/landi/cwp/browse.asp?a=128&bc=0&c=27855
Social Security Administration (SSA)
SSA pays retirement, disability and survivors benefits
to workers and their families and administer the Supplemental
Security Income program.
http://www.ssa.gov/
Ticket to Work Program
The Ticket to Work Program offers SSA disability beneficiaries
greater choice in obtaining the services they need to
help them go to work and achieve their employment goals.
http://www.ssa.gov/work/index.html
Addiction Resource Guide
Resource Guide to help professionals and consumers find
resources for dealing with addictive problems.
http://www.addictionresourceguide.com/
Alcohol and Drug Clearinghouse
A Substance Abuse and Mental Health Services Administration
site includes fact sheets about specific drugs and prevention
guides.
http://ncadi.samhsa.gov/
American Academy of Allergy, Asthma and Immunology
A resource for parents to learn about a variety of allergies
and asthmas.
http://www.aaaai.org/
Angelman Syndrome Foundation
This national website provides information, research,
and education regarding Angelman Syndrome. It offers help
and support to families and friends of people with this
syndrome.
http://www.angelman.org
Asperger Disorder
This national site provides answers to commonly asked
questions.
http://www.aspergers.com
Autism and Asperger Syndrome - MAAP
Services MAAP is a non-profit organization that provides
information and advice to families of more advanced individuals
with autism, Asperger's syndrome, and pervasive developmental
disorder (PDD).
http://maapservices.org/
Autistic Spectrum Disorders Publication
From the California Developmental Disabilities Council,
this is a resource for parents, practitioners, and policy
makers about the evaluation and treatment of Autism Spectrum
Disorders.
http://www.ddhealthinfo.org/asd.asp
Brain Injury Resource Center
This site has information about acquired and traumatic
brain injury and how it affects adults and children.
http://www.headinjury.com
Down Syndrome
Society
The National Down Syndrome Society envisions a world in
which all people with Down syndrome have the opportunity
to realize their life aspirations. NDSS is committed to
being the national leader in enhancing the quality of
life, and realizing the potential of all people with Down
syndrome.
www.ndss.org
Epilepsy.com
Epilepsy.com is an online resource provided by the Epilepsy
Therapy Development Project. Their mission is to inform
and empower two groups of patients and their families:
those facing newly diagnosed epilepsy, and those struggling
with epilepsy that has resisted treatment.
http://www.epilepsy.com/
Family Doctor
The American Academy of Family Physicians sponsors this
site. Search on a variety of topic areas: symptoms, conditions,
diseases.
http://familydoctor.org/
Family Village
The Family Village is a web site for children and adults
with disabilities, their families, and their friends and
allies. Family Village brings together thousands of online
resources in a directory. The Family Village library has
information on over 300 diagnosis. Learn about assistive
technology, legal rights and legislation, special education,
leisure activities and more.
http://www.familyvillage.wisc.edu/index.htmlx
Fragile X Foundation
The National Fragile X Foundation unites the Fragile X
community to enrich lives through educational and emotional
support, promote public and professional awareness, and
advance research toward improved treatments and a cure
for Fragile X.
http://www.fragilex.org/
Genetics Home
Reference
This is the National Institute of Health's website for
consumer information about genetic conditions and the
genes responsible for those conditions.
http://ghr.nlm.nih.gov
Healthfinder
Healthfinder has a searchable library with information
on prevention, wellness, diseases, conditions, alternative
medicine, insurance, ratings of organizations, online
check-ups.
http://www.healthfinder.gov/
Healthgate's
Mental Health Guide
The Mental Health Guide is a guide to mental health conditions
and medical procedures.
http://healthgate.partners.org/browsing/browseContent.asp
?fileName=36129.xml&title=Mental%20Health%20Guide
Marfan Syndrome
This is a national website which defines Marfan's Syndrome
and provides resources on-line and in print.
http://www.marfan.org/
Mental Health
Information
Descriptions of the conditions, treatment, and research.
There is a section that requires payment to access more
information.
http://www.mentalhealth.com/
Muscular
Dystrophy Association (MDA)
MDA is a voluntary health agency -- a dedicated partnership
between scientists and concerned citizens aimed at conquering
neuromuscular diseases that affect more than a million
Americans.
www.mdausa.org
National Institutes of
Health (NIH)
NIH is the nation's medical research agency – making important
medical discoveries that improve health and save lives.
NIH, a part of the U.S. Department of Health and Human
Services, is the primary Federal agency for conducting
and supporting medical research.
http://www.nih.gov/ National Library of Medicine This
site is a searchable database where you can access information
on any medical condition.
http://www.nlm.nih.gov/
Now You Have
A Diagnosis: What's Next?
This guide can help you to find out more about your diagnosis
and evaluate information to make treatment decisions.
Click on the links to the left of the text to view more.
http://www.ahrq.gov/consumer/diaginfo.htm
Office
of Rare Diseases The Office of Rare Diseases (ORD)
in the National Institutes for Health provides information
on more than 6000 rare diseases, including current research,
publications from scientific and medical journals, completed
research, ongoing studies, and patient support groups.
http://rarediseases.info.nih.gov
Sensory
Integration Resource Center
Based at the University of Colorado Health Sciences Center,
this site offers information to improve the quality of
life for children, adolescents and adults with sensory
integration dysfunction (DSI).
http://www.sinetwork.org/
State Health
Facts Online
Statehealthfacts.org is a project of the Henry J. Kaiser
Family Foundation and is designed to provide free, up-to-date,
and easy-to-use health data on all 50 states. Statehealthfacts.org
provides data on more than 500 health topics.
www.statehealthfacts.kff.org
United
Cerebral Palsy (UCP)
UCP is the leading source of information on cerebral palsy
and is a pivotal advocate for the rights of persons with
any disability. As one of the largest health charities
in America, the UCP mission is to advance the independence,
productivity and full citizenship of people with disabilities
through an affiliate network.
http://www.ucp.org/
WebMD
The WebMD blends award-winning expertise in medicine,
journalism, health communication and content creation
to bring you healthcare information. MedicineNet.com frequently
contributes to WebMD and comprises the Medical Editorial
Board. Independent Medical Review Board continuously reviews
the site for accuracy and timeliness.
www.webmd.com
These are resources specific to children’s health. There
are resources listed under Healthcare Resources that have
more health related information.
Child Health Toolbox
This Agency for Healthcare Research and Quality (AHRQ)
site has information about developing tools for evaluating
Medicaid, the State Children's Health Insurance Program
(SCHIP), Title V, and other health care service programs
for children.
http://www.ahcpr.gov/chtoolbx/
Kids
Health
KidsHealth is the largest and most-visited site on the
Web providing doctor-approved health information about
children from before birth through adolescence. Created
by The Nemours Foundation's Center for Children's Health
Media, the award-winning KidsHealth provides families
with accurate, up-to-date, and jargon-free health information
they can use. KidsHealth has been on the Web since 1995
— and has been accessed by about 300,000,000 visitors.
On a typical weekday, more than 350,000 people access
KidsHealth's reliable information.
www.kidshealth.org
Maternal and Child
Health Library
This is a searchable database in A-Z format serving the
maternal and child health (MCH) community with accurate,
reliable, and timely information and resources. The MCH
community includes health professionals, policymakers,
family advocates, community service professionals, MCH/public
health faculty and students, families, and the public.
This site includes information for each of these groups.
http://mchlibrary.info/AZtopics.htm
National
Information Center for Children and Youth with Disabilities
NICHCY
is a national information center that provides information
on children and disabilities. It includes publications,
state resources, and a page for teens to connect and chat
called Zigawhat!
http://www.nichcy.org
Carbon
Lehigh Intermediate Unit #21 (CLIU)
CLIU serves as the coordinating agency that brings together
diverse school districts, vocational schools, businesses,
higher education and community groups. CLIU provides a
broad range of services to fourteen public school districts,
non-public schools and two Vocational-Technical schools
of the Carbon and Lehigh counties. Services include: Curriculum
and Instruction, Staff Development, Educational Technologies,
Special Education Services, Non-Public School and Behavioral
Health Services. CLIU also offers technology solutions
through Management Information Systems department as well
as Business, Human Resources and Management services in
community and educational settings.
http://www.cliu.org/
Colonial Intermediate
Unit 20
The Colonial Intermediate Unit 20 is a regional agency
that provided consultative, advisory, and educational
program services to school districts within our geographic
area. CIU20 offers a continuum of programs and services
to meet the needs of children with low incidence disabilities.
We act as a consortium to provide quality programs and
services to pre school and school age children with disabilities
from school districts in Northampton, Monroe and Pike
Counties.
www.ciu20.org
Keystone STARS (Standards,
Training, Assistance, Resources, & Support)
Keystone STARS is an initiative of the Office of Child
Development to improve, support, and recognize the continuous
quality improvement efforts of early learning programs
in Pennsylvania.
http://www.pakeys.org
National Association
for the Education of Young Children (NAEYC)
Organization dedicated to improving the well-being of
all young children, with particular focus on the quality
of educational and developmental services for all children
from birth through age 8. NAEYC is committed to becoming
an increasingly high performing and inclusive organization.
http://www.naeyc.org/
Pennsylvania Association
of Intermediate Units (PAIU)
PAIU is a collaboration of the 29 intermediate units of
Pennsylvania. Established in 1971 by the Pennsylvania
General Assembly, intermediate units operate as regional
educational service agencies providing cost-effective,
management-efficient program to Pennsylvania's 501 public
school districts and over 2,400 non-public and private
schools. In addition, intermediate units serve as liaison
agencies between the school districts and the Pennsylvania
Department of Education.
http://www.paiu.org/
Pennsylvania Child
Care Association (PACCA)
PACCA is dedicated to facilitating the provision of quality
early care and education to the children of Pennsylvania
by: promoting the value of educationally appropriate child
care to the general public; advocating at the local, state,
and federal levels for quality early care and education
that responds to the needs of Pennsylvania children and
families; providing a forum in which members can work
cooperatively to develop programs and provide services;
advocate to enhance the status of the child care profession.
www.pacca.org
Pennsylvania Department
of Education
The mission of the Pennsylvania Department of Education
is to lead and serve the educational community to enable
each individual to grow into an inspired, productive,
fulfilled lifelong learner.
http://www.pde.state.pa.us/
Pennsylvania Pathways (PA Pathways)
A professional development program for early childhood
and school-age caregivers. Through this program the PA
Department of Public Welfare (DPW) delivers free and low
cost education and training opportunities to center-based,
home-based, and relative/neighbor caregivers. PA Pathways
provides four major categories of training and professional
development services for Keystone STARS.
www.ccrdpa.org/ PAPathways.htm
United Way of
the Greater Lehigh Valley
As the nation's leading community-solutions provider,
United Way invests in and activates the resources to make
the greatest possible impact in communities across America.
The United Way movement includes approximately 1,300 community-based
United Way organizations.
http://www.unitedwayglv.org/?tabId=1
References Addiction Resource Guide - http://www.addictionresourceguide.com/
Agency for Healthcare Research and Quality - http://www.ahrq.gov/
Alcohol and Drug Clearinghouse - http://ncadi.samhsa.gov/
American Academy of Allergy, Asthma and Immunology - http://www.aaaai.org/
Americans with Disabilities Act Portal - http://www.adaportal.org/
Angelman Syndrome Foundation - http://www.angelman.org
Asperger Disorder - http://www.aspergers.com
Association for People in Supported Employment - http://www.apse.org/
Autism and Asperger Syndrome - MAAP Services - http://maapservices.org/
Autism Society of America - Lehigh Valley Chapter
- http://www.asalehighvalley.org/
Autism Society ofAmerica - www.autism-society.org
Autistic Spectrum Disorders Publication - http://www.ddhealthinfo.org/asd.asp
Brain Injury Resource Center - http://www.headinjury.com
Carbon Lehigh Intermediate Unit #21 - http://www.cliu.org/
CDC Developmental Disabilities Information Center
- http://www.cdc.gov/ncbddd/dd/default.htm
Center for Research on Women with Disabilities
- http://www.bcm.tmc.edu/crowd/
Centers for Medicare and Medicaid Services - http://www.cms.hhs.gov/
Child Health Toolbox - http://www.ahcpr.gov/chtoolbx/
Colonial Intermediate Unit 20 - www.ciu20.org
Cornucopia of Disability Information - http://codi.buffalo.edu/
Department of Public Welfare - http://www.dpw.state.pa.us/
Disability History Museum - http://www.disabilitymuseum.org/
Disability Resources on the Internet
- http://www.disabilityresources.org/
DisabilityInfo.gov - http://www.disabilityinfo.gov
Educational Resources Information Center Clearinghouse
- http://ericec.org/
Epilepsy.com - http://www.epilepsy.com/
Family Doctor - http://familydoctor.org/ Family Medical
Leave Act Website - http://www.dol.gov/esa/whd/fmla/
Family Village - http://www.familyvillage.wisc.edu/index.htmlx
FMLA - Family Medical Leave Act - http://www.dol.gov/esa/whd/fmla/
Fragile X Foundation - http://www.fragilex.org/
Genetics Home Reference - http://ghr.nlm.nih.gov
Health & Human Services - www.hhs.gov
Healthfinder - http://www.healthfinder.gov/
Healthgate's Mental Health Guide - http://healthgate.partners.org/
browsing/browseContent.asp?fileName=36129.xm
l&title=Mental%20Health%20Guide
Home and Community Services Information System
- https://www.humanservices.state.pa.us/hcsis/default.asp
Human Services Research Institute - http://www.hsri.org/
Keystone STARS - http://www.pakeys.org
Kids Health - www.kidshealth.org
LANTA/MetroPlus – Easton Coach
- http://www.lantabus.com/services/metroplus.php
Lehigh County Department of Human Services
- http://www.lehighcounty.org/Human/hs.cfm
Makoa - disABILITY Information and Resources - http://www.makoa.org
Marfan Syndrome - http://www.marfan.org/
Maternal and Child Health Library - http://mchlibrary.info/AZtopics.htm
Medicaid Resource Book - http://www.kff.org/medicaid/2236-index.cfm
Medical Assistance Transportation Program - http://www.dpw.state.pa.us
/LowInc/MATP/003670190.htm
Mental Health Information - http://www.mentalhealth.com/
Muscular Dystrophy Association - www.mdausa.org
National Association for the Education of Young Children
- http://www.naeyc.org/
National Association of Disability - http://www.nod.org
National Down Syndrome Society - http://www.ndss.org/
National Information Center for Children and Youth with
Disabilities - http://www.nichcy.org
National Institute for the Severely Handicapped - www.nish.org
National Institutes of Health - http://www.nih.gov/
National Library of Medicine - http://www.nlm.nih.gov/
Northampton County Mental Health, Mental Retardation,
Drug &Alcohol Division
(NC MH/MR/D&A)
- http://www.northamptoncounty.org/northampton/cwp/view.asp?a=1528&Q=620700
&NorthamptonNav_GID=2001&northamptonNav=|34430|&northamptonNav_GID=1977
Now You Have A Diagnosis: What's Next? - http://www.ahrq.gov/consumer/diaginfo.htm
Office of Disability Employment Policy - http://www.dol.gov/odep/
Office of Mental Retardation - http://www.dpw.state.pa.us/General/About
DPW/DPWOrganization/OMR/
Office of Rare Diseases - http://rarediseases.info.nih.gov
Office of Vocational Rehabilitation - http://www.dli.state.pa.us/landi/cwp/
browse.asp?a=128&bc=0&c=27855
Pennsylvania Association of Intermediate Units - http://www.paiu.org/
Pennsylvania Association of Rehabilitation Facilities
- http://www.parf.org/
Pennsylvania Child Care Association - http://www.pacca.org/index.htm
Pennsylvania Deparment of Education - http://www.pde.state.pa.us/
Pennsylvania Developmental Disabilities Council - http://www.paddc.org/
Pennsylvania Pathways - www.ccrdpa.org/PAPathways.htm
Plan to Achieve Self Support - http://www.socialsecurity.gov/disabilityresearch/wi/pass.htm
Quality Mall - http://www.qualitymall.org/directory/
Sensory Integration Resource Center - http://www.sinetwork.org/
Social Security Administration - http://www.ssa.gov/
State Health Facts Online - www.statehealthfacts.kff.org
Ticket to Work Program - http://www.ssa.gov/work/index.html
United Cerebral Palsy - http://www.ucp.org/
United Way of the Greater Lehigh Valley - http://www.unitedwayglv.org/?tabId=1
WebMD - www.webmd.com
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